Please confirm the following:
Please see below a brief description of CHAEN’s Committees. If you are interested in participating, please indicate in the space provided.
To update the Guidelines on the diagnosis, therapy and management of HAE at least every five years or whenever significant changes to therapy have occurred.
Develop and implement a Knowledge Translation plan for the Guidelines.
To ensure physicians have access to the most sensitive and specific assays for the diagnosis of HAE.
To review the current state of assays for HAE available in Canada.
To identify which laboratories perform reliable assays and make that information publicly available.
To create an HAE Patient Register.
To ensure as many HAE treating centres as possible are participating in the Patient Register.
To establish goals and a program to encourage HAE Research.
To identify areas where there is a need for research in Canada.
To encourage and assist in the development of research proposals.
To promote participation in research by CHAEN members.
Please outline relevant skill or experience: