Hereditary angioedema (HAE) is a rare genetic disorder characterized by episodes of swelling (edema attacks) in different areas of the skin or the internal organs. In particular, it occurs in the upper respiratory tract and intestine.
The Canadian Hereditary Angioedema Network (CHAEN) is an organization of physicians who treat and/or are interested in Hereditary Angioedema. CHAEN is incorporated under the Canada Not-For-Profit Corporations Act.
Enable HAE patients in Canada to receive appropriate support and care so that they are able to live full lives.
CHAEN unites physicians committed to ensuring all HAE patients in Canada have access to excellent care that reflects current management and treatment guidelines, and works to promote research and education.
- To create a network of physicians across Canada who have expertise in the diagnosis and management of patients with HAE.
- To create HAE Guidelines.
- To create an HAE Patient Register.
- To establish a plan for achieving Comprehensive Care for patients.
- To establish goals and a program to encourage HAE Research.